As European health systems grapple with how to deliver increasingly advanced
therapies, rare disease patients in Sweden still face everyday challenges — from
securing a diagnosis to accessing appropriate care. Although rights are strong
on paper, families often find themselves stitching together services across a
decentralized system.
Ågrenska is a national competence center in Sweden working to bridge those gaps.
It supports people with rare diagnoses and their families in navigating health
and social services. “But there’s a limit to what one organization can do,” says
Zozan Sewger Kvist, Ågrenska’s CEO. POLITICO Studio spoke with her about where
the Swedish system falls short and what must change across Europe to ensure
patients are not left behind.
POLITICO Studio: From Ågrenska’s experience working with families of rare
disease patients across Sweden, where does the system most often break down?
Zozan Sewger Kvist: For 25 years the families have been telling us the same
thing: the system doesn’t connect.
Zozan Sewger Kvist, CEO, Ågrenska
The breakdown is most evident in health care, especially when transitioning from
pediatric to adult care. But it also happens when patients are transitioning
between schools, social services and medical teams. No one is looking at their
care from a holistic point of view. Families become their own project managers.
They are the ones booking appointments, chasing referrals, explaining the
diagnosis again and again. It’s a heavy burden.
That’s largely why our organization exists. We provide families with the
knowledge, networks and tools to navigate the system and understand their
rights. But there’s a limit to what one organization can do. In a perfect world,
these functions would already be embedded within public care.
> Without clear national coordination, it becomes much harder to monitor whether
> families are actually receiving the support they are entitled to.
PS: Access to rare disease care varies widely within many European countries and
Sweden is no exception. In practical terms, what do those regional disparities
look like?
ZSK: Swedish families have the same rights across the country, but regional
priorities differ. That leads to unequal access in practice. For example, areas
with university hospitals tend to have stronger specialist networks and
rehabilitation services. In more rural parts of the country, especially in the
north, it is harder to attract expertise, and families feel that gap directly.
In practical terms, that can mean something as basic as access to
rehabilitation. In some regions, children receive coordinated physiotherapy,
speech therapy and follow-up. In others, families struggle to access
rehabilitation at all. And that’s a big issue because a lot of Sweden’s health
care runs through rehabilitation — without it, referrals to other services and
treatments can stall.
PS: Would a comprehensive national rare disease strategy meaningfully change
outcomes across regions?
ZSK: The problem is compliance, not regulation. Sweden has strong rules but
regions have almost full freedom to organize care, which makes consistency
difficult. As it stands, without clear national coordination, it becomes much
harder to monitor whether families are actually receiving the support they are
entitled to.
A national rare disease strategy would not solve everything but it would set
expectations such as what the minimum level of care should look like, what
coordination should include and how outcomes are followed up.
A draft national strategy was developed in 2024, and there was real momentum.
Patient organizations, health care experts and the government were all involved.
Everyone was optimistic the framework would provide guidance and accountability.
After some delays, work on the national strategy has resumed, so hopefully we
will see it implemented soon.
> Families often feel they need to take on a coordinating role themselves. They
> describe an endless search — calling clinics, repeating their story, trying to
> connect the dots.
PS: Families often describe a long and fragmented path to diagnosis. Where does
that journey tend to go wrong, and what would shorten it most?
ZSK: Coordinated multidisciplinary teams would make the biggest difference —
teams that can look at the whole condition, not just one symptom at a time.
The challenge is that rare diseases often affect multiple organ systems. Several
specialists may be involved, but they do not always work together, and it may
not be clear who is taking responsibility for the whole case. When no one holds
that overview, delays multiply.
Sweden also lacks a fully integrated national health record system, so
specialists may be looking at different pieces of the same case without seeing
the full picture. Families often feel they need to take on a coordinating role
themselves. They describe an endless search — calling clinics, repeating their
story, trying to connect the dots.
PS: Sweden participates in the European Reference Networks, yet you’ve suggested
they’re underused. What’s missing in how Sweden leverages that expertise?
ZSK: The ERNs are a strong, established framework for connecting specialists
across borders. Swedish experts participate, but we are not using that structure
to its full potential. Participation often appears project-based rather than
long-term. Neighboring countries such as Norway, Denmark and Finland are more
proactive in leveraging these collaborations.
I would like to see Sweden invest more in turning these networks into durable
partnerships that support clinical practice — not just research initiatives.
> Rare disease care needs sustained political and financial follow-through.
> Without that, families will continue to carry burdens that the system should
> be managing.
PS: Sweden often falls behind other EU countries in terms of access to orphan
medicines (drugs that treat rare diseases). What needs to change in Sweden’s
approach to ensure patients aren’t left behind?
ZSK: Families are very aware of how access compares across Europe. They follow
these discussions closely, and when a treatment is available in one country but
not another, it is difficult for them to understand why.
In Sweden, reimbursement decisions often come down to cost-effectiveness
calculations. That makes access an ethical as well as an economic question. But
for a family, it is hard to accept that a few additional years of life or
stability are weighed against a financial threshold.
Some families choose to cross borders for treatment. But that can be quite a
complex, expensive process, depending on the kind of treatment.
I think greater transparency and clearer communication about the criteria and
long-term impact — not only the immediate cost — would make difficult outcomes
easier to understand.
PS: You’ve worked with families for decades. Have things materially improved —
and what worries you most if reforms stall?
ZSK: Unfortunately, I cannot say that things have materially improved. When I
look back at the challenges families described 15 or 20 years ago, many of them
are still the same.
There have been some positive developments. Digital access means families are
more informed and can connect more easily with others in similar situations.
That has strengthened their voice.
But structurally, many of the underlying gaps remain. Rare disease care needs
sustained political and financial follow-through. Without that, families will
continue to carry burdens that the system should be managing.
Disclaimer
POLITICAL ADVERTISEMENT
* The sponsor is Alexion Pharmaceuticals
* The entity ultimately controlling the sponsor: AstraZeneca plc
* The political advertisement is linked to policy advocacy around rare disease
governance, funding, and equitable access to diagnosis and treatment across
Europe
More information here.
Tag - Organs
KYIV — Two days after Elon Musk’s SpaceX launched Starlink verification and
blocked unverified terminals in Ukraine, the pace of Russia’s offensive appears
to be slowing, a Ukrainian military official told POLITICO.
“Currently, such a trend is indeed observed. But it will be necessary to monitor
further whether it will continue, whether there will be other factors,” said the
official, granted anonymity to discuss sensitive matters.
“However, at some places, Ukrainian military Starlinks which have not been
registered yet have also been disconnected. But the registration process is
ongoing,” the official added.
“In fact, they [Russian units] have problems now. They are like blind kittens,”
a Ukrainian General Staff commanders told POLITICO separately, also granted
anonymity to discuss sensitive matters.
On Friday, Russian military bloggers, who in the past have praised Musk for his
anti-Ukrainian rhetoric, complained about the mass failure of terminals for the
Starlink satellite service that began on the evening on Feb. 4 on the frontline
in Ukraine.
“The Russian Armed Forces used gray Starlinks to organize communications at the
front. The danger is that it was an easy way compared to doing something new,
pulling an ever-breaking optical fiber, setting up ‘bridges,’ or even working en
masse with digital stations to organize the transmission of small data packets,”
Russian pro-war military Telegram channel Dva Mayora, said in a post on
Thursday. “Gray” Starlink terminals are ones that are not authorized or
verified.
“Now it’s either the old-fashioned way, or they’ll come up with something of
their own urgently,” the bloggers added, blaming Musk for assisting the
Ukrainian army.
Earlier this week, Ukraine’s Defense Ministry, in coordination with SpaceX,
launched verification of Starlink terminals to protect civilians from Russian
drones, which have begun illegally using Starlink connections during massive
attacks on Ukraine’s energy grid.
“This move is in direct response to Russian forces’ illicit use of Starlink
terminals. Russian drones equipped with Starlink are difficult to intercept:
They fly at low altitudes, are resistant to electronic warfare, and can be
piloted in real time from long distances,” Ukraine’s Defense Ministry said in a
statement sent to POLITICO.
“Soon, only registered and authorized terminals will operate within Ukraine;
any unverified devices will be deactivated,” the ministry added, urging all
commanders of Ukrainian army units, as well as civilians, to rapidly register
their Starlink terminal serial numbers with different Ukrainian state organs.
It took only a day until the massive Starlink shutdown at the war front.
“Russians have not just a problem on the fronts; the enemy has a disaster. All
command of the troops is collapsing. Assault operations have been stopped in
many areas. Our troops also reported problems with those who did not promptly
submit lists for private Starlinks. The processing is ongoing,” Sergii
Bezkrestnov, an adviser to the Ukrainian Defense Ministry, said in a post on
Facebook.
Many Ukrainian units indeed reported that their Starlink terminals, even once
registered, have stopped working, endangering drone operations and evacuations.
However, the situation has started changing for the better.
“Some of the blocked Starlinks are already working; the crews are carrying out
their tasks. I expect that they will all be working very soon,” said Serhii
Kostinskyi, commander of the Ukrainian drone unit “Serafims.”
Ukrainian Defense Minister Mykhailo Fedorov thanked Musk personally for
Starlink’s shutdown for the Russian army in Ukraine, saying the tech billionaire
once again came through at a pivotal moment. “You’re most welcome,” Musk replied
via X.
Musk’s decision to rapidly activate Starlink terminals in February 2022 has made
Starlink connection vital for not only the Ukrainian army, but also for civilian
and energy infrastructure.
More than 50,000 terminals have been deployed across the country since the war
began, provided through donors, international partners and Ukraine’s ministry of
digital transformation. In addition, hundreds of thousands of terminals have
been purchased by Ukrainians to support civilian needs and the national energy
sector.
These terminals have enabled rapid restoration of communications in newly
liberated areas and ensured continuity for emergency services, government
operations and critical infrastructure. Starlink is used by internet providers
and telecom operators, medical staff and military personnel, teachers and
volunteers, journalists and IT companies, and rescue teams operating at
resilience centers, the Ukrainian Defense Ministry said.
CHIATURA, Georgia — Giorgi Neparidze, a middle-aged man from near the town of
Chiatura in western Georgia, still has marks on his lips from where he sewed his
mouth shut during a hunger strike last year.
He says Georgian Manganese, a mining company with close links to the government,
has wrought environmental devastation around his home and has ignored the rights
of its workers. He is seeking compensation.
Europe, which imports Georgia’s manganese, is partly to blame for the black
rivers and collapsing houses in Chiatura district, Neparidze says. The former
miner-turned-environmental and civil rights activist claims that in one village,
Shukruti, toxic dust from the pits is making people unwell. Filthy black water,
laced with heavy metals, periodically spurts out of pumps there. Houses are
collapsing as the tunnels underneath them cave in.
Manganese, a black metal traditionally used to reinforce steel, is crucial for
Europe’s green energy transition as it is used in both wind turbines and
electric car batteries. The metal is also vital for military gear like armor and
guns. In 2022, the European Union bought 20,000 metric tons of manganese alloys
from Georgia — almost 3 percent of its total supply. A year later the bloc added
manganese to its list of critical minerals.
But Chiaturans say their lives are being ruined so that Western Europeans can
breathe cleaner air. “We are sacrificed so that others can have better lives,”
Neparidze says. “There are only 40,000 people in Chiatura. They might feel ill
or live in bad conditions but they are sacrificed so that millions of Europeans
can have a cleaner environment.” Neparidze says cancer rates in the region are
unusually high. Doctors at a hospital in Chiatura back up the observation, but
no official study has linked the illnesses to the mines.
An aerial view of Chiatura with the polluted Kvirila River running through the
town | Olivia Acland
Hope that things will improve appears dim. European companies often don’t know
where their manganese is sourced from. As ANEV, Italy’s wind energy association,
confirms: “There is no specific obligation to trace all metals used in steel
production.”
Last year the EU enacted a law that was meant to change that. The Corporate
Sustainability Due Diligence Directive obliges companies to run closer checks on
their supply chains and clamp down on any human rights violations, poor working
conditions and environmental damage.
But barely a year after it took effect, the European Commission proposed a major
weakening of the law in a move to reduce red tape for the bloc’s sluggish
industry. EU member countries, motivated by this deregulation agenda, are now
pushing for even deeper cuts, while French President Emmanuel Macron and German
Chancellor Friedrich Merz want to get rid of the law altogether.
Meanwhile, Europe’s appetite for mined raw materials like manganese, lithium,
rare earths, copper and nickel is expected to skyrocket to meet the needs of the
clean energy transition and rearmament. Many of these resources are in poorly
regulated and often politically repressive jurisdictions, from the Democratic
Republic of Congo to Indonesia and Georgia. Weakening the EU supply chain law
will have consequences for communities like Neparidze’s.
“Only an empty shell of the directive remains,” says Anna Cavazzini, a member of
the European Parliament’s Green Party, adding that the legislature caved to
pressure from businesses seeking to reduce their costs. “Now is not the time to
abandon the defense of human rights and give corporations a free hand,” she
says.
A resident of Chiatura standing on a collapsed house following a mining-related
landslide in Itkhvisi village. | Olivia Acland
As Georgia’s government pivots toward Russia and stifles dissent, life is
becoming increasingly dangerous for activists in Chiatura.
On April 29, four activists including Neparidze were arrested for allegedly
assaulting a mine executive. A statement put out by Chiatura Management Company,
the firm in charge of staffing Georgian Manganese’s underground operations, says
that Tengiz Koberidze, manager of the Shukruti mine, was “verbally abused and
pelted with stones.”
Supporters call it a staged provocation in which Koberidze tried to incite
violence, and say it’s part of a broader campaign to silence resistance. If
convicted they face up to six years behind bars. Koberidze did not respond to
requests for comment.
Chiatura residents are protesting over two overlapping issues. On one side,
miners are demanding safer working conditions underground, where tunnel
collapses have long been a risk, along with higher wages and paid sick leave.
When the mine was temporarily shut in October 2024, they were promised 60
percent of their salaries, but many say those payments never materialized.
Workers are also raising concerns about mining pollution in the region.
“The company doesn’t raise wages, doesn’t improve safety, and continues to
destroy the natural environment. Its profits come not just from extracting
resources, but from exploiting both workers and the land,” says one miner, David
Chinchaladze.
Georgian Manganese did not respond to interview requests or written questions.
Officials at Georgia’s Ministry of Mines and the government’s Environment
Protection and Natural Resources Department did not respond to requests for
comment.
A collapsing building in Shukruti. | Olivia Acland.
The second group of protesters comes from the village of Shukruti, which sits
directly above the mining tunnels. Their homes are cracking and sinking into the
ground. In 2020, Georgian Manganese pledged to pay between 700,000 and 1 million
Georgian lari ($252,000 to $360,000) annually in damages — a sum that was meant
to be distributed among residents.
But while the company insists the money has been paid, locals — backed by
watchdog NGO Social Justice — say otherwise. According to them, fewer than 5
percent of Shukruti’s residents have received any compensation.
Their protest has intensified in the last year, with workers now blocking the
roads and Shukruti residents barring entry to the mines. But the risks are
intensifying too.
Since suspending EU accession talks last year amid deteriorating relations with
the bloc, Georgia’s ruling party has shuttered independent media, arrested
protestors and amplified propaganda. The country’s democracy is “backsliding,”
says Irakli Kavtaradze, head of the foreign department of the largest opposition
political party, United National Movement. Their tactics “sound like they come
from a playbook that is written in the Kremlin,” he adds.
‘KREMLIN PLAYBOOK’
In the capital Tbilisi, around 200 kilometers east of Chiatura, protesters have
taken to the streets every night since April 2, 2024 when the government
unveiled a Kremlin-style “foreign agents” law aimed at muzzling civil society.
Many demonstrators wear sunglasses, scarfs and masks to shield their identities
from street cameras, wary of state retaliation.
A scene from the 336th day of protests in Tbilisi in April 2025. | Olivia
Acland.
Their protests swelled in October last year after the government announced it
would suspend talks to join the EU. For Georgians, the stakes are high: Russia
already occupies 20 percent of the country after its 2008 invasion, and people
fear that a more profound drift from the EU could open the door to further
aggression.
When POLITICO visited in April, a crowd strode down Rustaveli Avenue, the city’s
main artery. Some carried EU flags while others passed around a loudspeaker,
taking it in turns to voice defiant chants. “Fire to the oligarchy!” one young
woman yelled, the crowd echoing her call. “Power lies in unity with the EU!”
another shouted.
They also called out support for protestors in Chiatura, whose fight has become
something of a cause célèbre across the country: “Solidarity to Chiatura!
Natural resources belong to the people!”
The fight in Chiatura is a microcosm of the country’s broader struggle: The
activists are not just taking on a mining company but a corporate giant backed
by oligarchs and the ruling elites.
Georgian Manganese’s parent company, Georgian American Alloys, is registered in
Luxembourg and counts Ukrainian oligarch Ihor Kolomoisky as a shareholder. He is
in custody in Kyiv over allegations that he hired a gang to kill a lawyer who
threatened his business interests in 2003. Kolomoisky has also been sanctioned
by the United States for his alleged involvement in siphoning billions out of
PrivatBank, Ukraine’s largest bank.
Giorgi Kapanadze — a businessman closely connected with the ruling Georgian
Dream party of Bidzina Ivanishvili — is listed as general manager of Georgian
American Alloys.
Until recently, Kapanadze owned Rustavi TV, a channel notorious for airing
pro-government propaganda. The European Parliament has called on the EU to hit
Kapanadze with sanctions, accusing him of propping up the country’s repressive
regime.
Kolomoisky and Kapanadze did not respond to POLITICO’s requests for comment.
The government swooped in to help Georgian Manganese in 2016 when a Georgian
court fined it $82 million for environmental destruction in the region. The
state placed it under “special management” and wrote off the fine. A new
government-appointed manager was tasked, on paper, with cleaning up the mess. He
was supposed to oversee a cleanup of the rivers that flow past the mines, among
other promises.
Manganese mining pit in Chiatura region, Georgia. | Olivia Acland
But POLITICO’s own tests based on four samples taken in April 2025 from the
Kvirila River, which runs through Chiatura, as well as its tributary, the
Bogiristiskali, which were examined in a U.K. licensed laboratory, show the
manganese levels in both rivers are over 10 times the legal limit. Iron levels
are also higher than legally permitted. Locals use the polluted water to
irrigate their crops. Fishermen are also pulling in increasingly empty nets as
the heavy metals kill off aquatic life, according to local testimonies. The
water from the Kvirila River flows out into the Black Sea, home to endangered
dolphins, sturgeons, turtles and sharks.
A 2022 analysis by the Georgian NGO Green Policy found even worse results, with
manganese in the Kvirila River averaging 42 times the legal limit. The group
also detected excessive levels of iron and lead.
Chronic manganese exposure can lead to irreversible neurological damage — a
Parkinson’s-like condition known as manganism — as well as liver, kidney and
reproductive harm. Lead and iron are linked to organ failure, cancer and
cardiovascular disease.
On Georgian Manganese’s website, the company concedes that “pollution of the
Kvirila River” is one of the region’s “ecological challenges,” attributing it to
runoff from manganese processing. It claims to have installed German-standard
purification filters and claims that “neither polluted nor purified water”
currently enters the river.
Protesters like Neparidze aren’t convinced. They claim the filtration system is
turned on only when inspectors arrive and that for the rest of the time,
untreated wastewater is dumped straight into the rivers.
BLOCKING EXPORTS
Their protests having reaped few results, Chiaturans are taking increasingly
extreme measures to make their voices heard.
Gocha Kupatadze, a retired 67-year-old miner, spends his nights in a tarpaulin
shelter beside an underground mine, where he complains that rats crawl over him.
“This black gold became the black plague for us,” he says. “We have no choice
but to protest.”
Kupatadze’s job is to ensure that manganese does not leave the mine. Alongside
other protesters he has padlocked the gate to the generator that powers the
mine’s ventilation system, making it impossible for anyone to work there.
Kupatadze says he is only resorting to such drastic measures because conditions
in his village, Shukruti, have become unlivable. His family home, built in 1958,
is now crumbling, with cracks in the walls as the ground beneath it collapses
from years of mining. The vines that once sustained his family’s wine-making
traditions have long since withered and died.
Gocha Kupatadze, an activist sleeping in a tarpaulin tent outside a mine. |
Olivia Acland.
For over a year, protesters across the region have intermittently blocked mine
entrances as well as main roads, determined to stop the valuable ore from
leaving Chiatura. In some ways it has worked: Seven months ago, Chiatura
Management Company, the firm in charge of staffing Georgian Manganese’s
underground operations, announced it would pause production.
“Due to the financial crisis that arose from the radical protests by the people
of Shukruti village, the production process in Chiatura has been completely
halted,” it read.
Yet to the people of Chiatura, this feels more like a punishment than a
triumph.
Manganese has been extracted from the area since 1879 and many residents rely on
the mines for their livelihoods. The region bears all the hallmarks of a mining
town that thrived during the Soviet Union when conditions in the mines were much
better, according to residents. Today, rusted cable cars sway above concrete
buildings that house washing stations and aging machinery.
While locals had sought compensation for the damage to their homes, they now
just find themselves out of work.
Soviet-era buildings and mining infrastructure around Chiatura. | Olivia
Acland.
Making matters worse, Georgian Manganese, licensed to mine 16,430 hectares until
2046, is now sourcing much of its ore from open pits instead of underground
mines. These are more dangerous to the communities around them: Machines rip
open the hillsides to expose shallow craters, while families living next to the
pits say toxic dust drifts off them into their gardens and houses.
MORE PITS
The village of Zodi is perched on a plateau surrounded by gently undulating
hills, 10 kilometers from Chiatura. Many of its residents rely on farming, and
cows roam across its open fields. “It is a beautiful village with a unique
microclimate which is great for wine-making,” says Kote Abdushelishvili, a
36-year-old filmmaker from Zodi.
Mining officials say the village sits on manganese reserves. In 2023,
caterpillar trucks rolled into Zodi and began ripping up the earth. Villagers,
including Abdushelishvili, chased them out. “We stopped them,” he says, “We said
if you want to go on, you will have to kill us first.”
A padlocked gate to the mine’s ventilation system. | Olivia Acland
Abdushelishvili later went to Georgian Manganese’s Chiatura office to demand a
meeting with the state-appointed special manager. When he was turned away, he
shouted up to the window: “You can attack us, you can kill us, we will not
stop.”
Two days later, as Abdushelishvili strolled through a quiet neighborhood in
Tbilisi, masked men jumped out of a car, slammed him to the pavement and beat
him up.
Despite the fierce resistance in Chiatura, Georgian Manganese continues to send
its metal to European markets. In the first two months of 2025, the EU imported
6,000 metric tons of manganese from Georgia. With the bloc facing mounting
pressures — from the climate crisis to new defense demands — its hunger for
manganese is set to grow.
As the EU weakens its corporate accountability demands and Georgia drifts
further into authoritarianism, the voices of Chiatura’s people are growing even
fainter.
“We are not asking for something unreasonable,” says activist Tengiz Gvelesiani,
who was recently detained in Chiatura along with Neparidze, “We are asking for
healthy lives, a good working environment and fresh air.”
Georgian Manganese did not respond to requests for comment.
This article was developed with the support of Journalismfund Europe.
Be afraid. Be very afraid.
Russian President Vladimir Putin and Chinese President Xi Jinping were captured
privately talking about living to at least 150 years old on the sidelines of
China’s massive Victory Day parade in Beijing.
According to audio picked up on CCTV, the two were overheard musing about the
possibility of immortality through organ transplants and advanced medical
procedures.
“Earlier, people rarely lived to 70, but these days at 70 you are still a
child,” Xi told Putin according to the translator in Russian.
“With the development of biotechnology, human organs can be continuously
transplanted and people can live younger and younger, and even achieve
immortality,” Putin replied, according to translation in Mandarin.
“Predictions are, this century, there is also a chance of living to 150,” Xi
responded.
Xi hosted 26 world leaders, including Putin and North Korean dictator Kim Jong
Un in Beijing on Wednesday, for a huge military parade which commemorated 80
years since Japan’s surrender in World War II and China’s victory over occupying
forces.
The event marked the first time the three rulers — Xi, Putin and Kim — have
appeared together in public.
China has a long history of organ harvesting from executed prisoners, which was
officially banned in 2015. That hasn’t curtailed the practice, however, with the
government turning to targeted minorities for organs, including the Uyghers
facing a genocide in the western part of the country.
Putin and Xi are both 72.
Last year, The Times of London reported that Kremlin officials had directed
scientists to fast-track anti-aging research, focusing on cellular degeneration,
cognitive decline and strengthening the immune system.
PARIS — A petition launched by a 23-year-old student to repeal a new French law
on farming has garnered more than 549,000 signatures and could therefore be
debated in the French parliament — a first in France’s recent history.
The French parliament earlier this month adopted a law, dubbed “Loi Duplomb”
after the name of one of its proponents, which its supporters say would make
life easier for farmers by cutting red tape, but also by temporarily allowing
the use of acetamiprid, an insecticide that has been banned in France since
2018.
The text is backed by the government and also by major farmer lobbies FNSEA and
Jeunes Agriculteurs, while one left-wing farmers union as well as green and
left-wing parties oppose it.
The petition launched by Eleonore Pattery — an unknown university student from
Bordeaux with a focus on environmental rules — calls for repealing the text,
arguing that it is “a scientific, ethical, environmental and health aberration.”
On Saturday the number of signatures passed the threshold of 500,000. Beyond
that threshold, the heads of parliamentary groups or parliamentary committees
can propose to organize a parliamentary debate on it.
The president of the National Assembly economic affairs committee, Aurélie
Trouvé, from the left-wing France Unbowed party, said she will make that
proposal in the fall.
“It is the first time it happens in the history of the National Assembly,” a
jubilant Trouvé told POLITICO over the phone on Saturday.
But, for the debate to happen, the proposal has to first get the nod of the
National Assembly’s Conference of Presidents, an organ which gathers key
lawmakers including the leaders of permanent parliamentary committees like
Trouvé. The Conference of Presidents will meet again on Sept. 12.
“I hope that we will be able to have this debate,” Trouvé said, warning that
ignoring the petition would be a “democratic denial.”
While the text can’t be repealed during the parliamentary debate, the success of
the petition is a blow for the government and for farmers’ lobbies that have
defended the measure on a symbolical level.
France’s Constitutional Council is also looking into the text and could censor
part of it if the council considers them to be contrary to the constitution.